Rare diseases Italy
UNIAMO FIMR Onlus is the Italian alliance of Patient Associations and an APS (Social Promotion Association), founded in 1999, that brings together nearly a hundred associations of rare diseases among national and regional, and is the Italian National Alliance of EURORDIS, the European Organization for Rare Disease. The aim in founding UNIAMO FIMR onlus is to promote protection policies and improve quality of life of patients affected by rare diseases.
UNIAMO's activity is articulated between actions and projects, these last financed both by public calls of the Ministry of Labour and Social Policy and private funding.
Over the years UNIAMO signed and put into effect memorandums of intents with several organizations in the health sector.
Empowerment of patients, training of doctors on rare diseases, cooperation with all stakeholders involved in the field of rare diseases, such as the Ministry of Health, as well as Scientific Societies as many of the major public and private Institutions in the health area are some of our main assets of action
UNIAMO F.l.M.R., the non-profit federation of Patient Organizations with rare diseases, has always been committed in protecting the rights and improving the quality of life of the patient and his family and is actually representing patients point of view and rights in six regional technical and scientific boards for rare diseases: Lazio, Lombardy, Puglia, Calabria, Sicily, Campania and Marche.
Improvement of the quality of life of people affected by rare diseases, through the activation, the promotion and protection of fundamental rights of rare disease patients in research, bioethics, health and social policy.